Well, I saw my doc early this am and she pretty much confirmed my lack of valves and surgical approach to “fixing” my vasculature. For now. Technology is incredible, and medicine is constantly advancing. For now, swelling = here to stay. There’s just NOT a lot to work with, and as I’ve still got hard clot in my leg, well…. there just aren’t a lot of options. Growing up, I remember thinking and believing that ANYTHING was possible – but life experiences, my health, and the direction that I’ve chosen to travel have made me think otherwise. I think there are a lot of things that CAN happen, and on the days that I feel strong enough to fight for them, I will. Other days – the shit days (that we all have) – it’s different.
Additionally we discussed other changes that I could make to help with inflammation – both from lupus and my Chronic Venus Insufficiency/Post Thrombatic Syndrome. Definitely compression sock wearing (Hello Vitalsox!) is key…. as is elevation…massage and possibly acupuncture (although with a hefty daily lifelong dose of Coumadin, that may not be possible)… movement ALWAYS (movement = circulation = happy legs!)… aaaand…. temporarily trying some dietary adjustments.
So…. when I brought up the idea of eating according to a Paleo or Primal Diet mentality (THANK YOU FOR THE SUGGESTIONS), she perked right up. Absolutely the foods that we eat contribute to our body’s function. Yes – I have a pretty severe auto-immune disorder….BUT there are things I can do to help my body head in a better direction. It won’t make my lupus go away, but maybe tweaking what I eat (here are there) will contribute to less inflammation. And for me, less inflammation = less potential swelling.
It’s something to think about.
So… when I’m ready and the timing is right, she wants me to try avoiding the following foods for 2-4 weeks:
Um…. yeah… about that list. That’s pretty much what I eat. Obviously I eat veggies and fruits, eggs, nuts, and dairy – but let’s face it…. wheat is GOOD (beer and bread – in that order)…. Sugar is good (what do I always say about that icing thing?)… Alcohol is necessary (hello – I’m a Marine wife, and as another spouse once told me, “we’ve ALL got hard liquor in the house”)…. Coffee is how I start my day (there’s nothing I can add – except that coffee is how I start my day)… Citrus – meh.
With that in mind – it’s not like I’m being graded or anything. And she confirmed that people cheat all the time – it’s just part of life. We BOTH think it would be interesting to try adapting a little bit of what I eat, and see what the effects are. At this point – I’m pretty much game for anything, and don’t have anything left to loose. I generally eat pretty healthy anyway (and I have to eat enough greens/veggies/fruits to keep my Vitamin K and Coumadin counts constant) – but…well… there you go.
Obviously, I need to work on this timing thing. N returns on Monday (I AM SO EXCITED – it’s only been 5 weeks, but still….. every homecoming is special, and should be celebrated) – and trust me…. there is NO WAY we’re not having a Pizza Port date. It’s just what we do. But for his upcoming deployment, I would absolutely want to try some of this…. I don’t think I could not feed him wheat, sugar, alcohol, coffee or citrus right before he deploys for 7 months – that’s just not right. Oh well.
So for now – I carry on. Keep up with the physical activity. Stay happy and positive (some days easy, other days – meh). Think about a dietary approach to curbing inflammation. Wear the compression socks + elevate. Eat the icing, regardless of diet…. and while we’re at it – toss in a Belgian Golden Ale too. And sport the Cowboy boots – because those make me happy.
Keep on keeping on – have a great day everyone! And thank you once again for all of your support!